International Rare Disease Day丨Do you know these groups? Caring starts with understanding…

Pancreatic neuroendocrine cell tumor

Amyotrophic lateral sclerosis

Multiple sclerosis

Huntington's disease

…

The vast majority of people

Unfamiliar with these strange diseases

These diseases have a common name:

Rare Diseases

Did you know?

The last day of February every year is International Rare Disease Day.

The theme of this year's International Rare Disease Day is

Share Your Colours

According to the World Health Organization's definition

Rare diseases are

"The incidence rate is 0.65 per thousand

Diseases that affect one in a thousand people

There are about 7,000 rare diseases identified worldwide. Studies show that more than 80% of rare diseases are caused by genetic factors, and 50% occur at birth or in childhood.

It is reported that there are about 20 million patients with rare diseases in my country, with more than 200,000 new patients each year. The average diagnosis and treatment time for them is more than two years, and they face various difficulties such as lack of treatment drugs, high unit prices of drugs, and inability to be completely cured.

Today is the International Rare Disease Day. Pay attention to rare diseases and start by understanding them!

Comprehensive sources: Xinhua News Agency, CCTV News, etc.

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